Some With Alzheimer’s Find Care in Far-Off Nations
By Denis D. Gray 31 December 2013
CHIANG MAI, Thailand — Residents of this facility for people with Alzheimer’s disease toss around a yellow ball and laugh under a cascade of water with their caregivers, in a swimming pool ringed by palm trees and wind chimes. Susanna Kuratli, once a painter of delicate oils, swims a lap and smiles.
Watching is her husband, Ulrich, who has a heart-rending decision: to leave his wife of 41 years in this facility 9,000 kilometers (5,600 miles) from home, or to bring her back to Switzerland.
Their homeland treats the elderly as well as any nation on Earth, but Ulrich Kuratli says the care here in northern Thailand is not only less expensive but more personal. In Switzerland, “You have a cold, old lady who gives you pills and tells you to go to bed,” he says.
Kuratli and his three grown children have given themselves six months to decide while the retired software developer lives alongside his 65-year-old wife in Baan Kamlangchay—“Home for Care from the Heart.” Patients live in individual houses within a Thai community, are taken to local markets, temples and restaurants, each with three caretakers working in rotation to provide personal around-the-clock care. The monthly $3,800 cost is a third of what basic institutional care would come to in Switzerland.
Kuratli is not yet sure how he’ll care for Susanna, who used to produce a popular annual calendar of her paintings. But he’s leaning toward keeping her in Thailand, possibly for the rest of her life.
“Sometimes I am jealous. My wife won’t take my hand but when her Thai carer takes it, she is calm. She seems to be happy,” he says. “When she sees me she starts to cry. Maybe she remembers how we were and understands, but can no longer find the words.”
Spouses and relatives in Western nations are increasingly confronting Kuratli’s dilemma as the number of Alzheimer’s patients and costs rise, and the supply of qualified nurses and facilities struggles to keep up. Faraway countries are offering cheaper, and to some minds better, care for those suffering from the irreversible loss of memory.
The nascent trend is unnerving to some experts who say uprooting people with Alzheimer’s will add to their sense of displacement and anxiety, though others say quality of care is more important than location. There’s also some general uneasiness over the idea of sending ailing elderly people abroad: The German press has branded it “gerontological colonialism.”
Germany is already sending several thousand sufferers, as well as the aged and otherwise ill, to Eastern Europe, Spain, Greece and Ukraine. Patients are even moving from Switzerland, which was ranked No. 1 in health care for the elderly this year in an index compiled by the elderly advocacy group HelpAge International and the U.N. Population Fund.
The Philippines is offering Americans care for $1,500 to $3,500 a month—as compared to $6,900 the American Elder Care Research Organization says is the average monthly bill for a private room in a skilled nursing US facility. About 100 Americans are currently seeking care in the Philippines but more facilities are being built and a marketing campaign will be launched in 2014, says J.J. Reyes, who is planning a retirement community near Manila.
Facilities in Thailand also are preparing to attract more Alzheimer’s sufferers. In Chiang Mai, a pleasant city ringed by mountains, Baan Kamlangchay will be followed by a $10 million, holiday-like home scheduled to open before mid-2014. Also on the way is a small Alzheimer’s unit within a retirement community set on the grounds of a former four-star resort. With Thailand seeking to strengthen its already leading position as a medical tourism and retirement destination, similar projects are likely.
The number of people over 60 worldwide is set to more than triple between 2000 and 2050 to 2 billion, according to the World Health Organization. And more are opting for retirement in lower-cost countries.
“Medical tourism” has become a booming industry, with roughly 8 million people a year seeking treatment abroad, according to the group Patients Without Borders.
The UK-based Alzheimer’s Disease International says there are more than 44 million Alzheimer’s patients globally, and the figure is projected to triple to 135 million by 2050. The Alzheimer’s Association estimates that in the United States alone, the disease will cost $203 billion this year and soar to $1.2 trillion by 2050.
The pioneering Baan Kamlangchay was established by Martin Woodtli, a Swiss who spent four years in Thailand with the aid group Doctors Without Borders before returning home to care for his Alzheimer’s diagnosed mother.
Wanting to return to Thailand and knowing that Thais traditionally regard the elderly with great respect, he brought his mother to Chiang Mai, where she became the home’s first “guest.” Woodtli never uses the word “patient.”
Over the next 10 years, the 52-year-old psychologist and social worker purchased or rented eight two-story houses where 13 Swiss and German patients now reside. Two people normally share the modest but well-kept, fully furnished houses, each sleeping in a separate bedroom along with their caretaker.
Breakfast and lunch are eaten together at another residence where Woodtli, his wife and son live. On most afternoons, the group gathers at a private, walled park to swim, snack and relax on deck chairs. Regular outside activities are organized because he believes these stimuli may help delay degeneration.
“Movement is important. Tensions are also relieved if they have freedom to move. Our carers allow our guests a lot of space as long as it does not pose a danger to them,” he says. “In Switzerland we don’t have opportunity for such care.”
He says his guests “cannot explain it, but I think they feel part of a family, a community, and that is very important.”
Yet Woodtli says he has received criticism about “the Swiss starting to export their social problems.”
The German press has recently described shifting the aged and ailing abroad as “grandmother export.”
Sabine Jansen, head of Germany’s Alzheimer Society, says that while some with Alzheimer’s may adjust to an alien place, most find it difficult because they live in a world of earlier memories.
“People with dementia should stay in their familiar environment as long as possible. They are better oriented in their own living places and communities,” she says. “Friends, family members, neighbors can visit them. Also because of language and cultural reasons, it is best for most to stay in their home country.”
Angela Lunde of the US-based Mayo Clinic says that generally the afflicted do better in a familiar environment, but over time, even those with advanced stages of the disease can adjust well. “I think a positive transition has less to do with the move itself and more with the way in which the staff and new environment accommodates the person living with dementia,” she says.
Woodtli agrees that moving to country like Thailand is not the answer for everyone with Alzheimer’s, but those who have traveled widely and are accustomed to change can probably adapt.
“One of our guests sometimes wakes up in the morning and says, ‘Where am I?’ But she would do the same if she was in a care center in Switzerland,” he says. “And they take their past with them. One guest thinks she is in a schoolhouse at Lake Lucerne.”
Those who end up staying at a facility being built in the outlying Chiang Mai district of Doi Saket will have amenities that would be tough for its European counterparts to match, including a clubhouse with a massage room and beauty parlor, a restaurant, Swiss bakery and pavilions with soaring ceilings and skylights.
“The idea is that this is a resort, not a hospital,” says Marc H. Dumur, a veteran hotelier who will manage the Swiss-owned, 3.5-hectare (8.7-acre) facility built amid orchards and groves of teak. Going up are 72 patient rooms in six spacious pavilions, plus villas for visiting family members. Around-the-clock care will be provided by a staff of 150, including a Swiss head nurse and at least one licensed Thai nurse for each pavilion.
These patient-to-carer ratios reflect the costs in a developing country like Thailand and the West. A licensed Thai nurse earns less than $700 a month, compared to about $7,000 for one in Switzerland, where care centers will have one nurse responsible for 10 patients.
Care at the Doi Saket home will cost $6,000 a month, roughly what a mid-level employee in Switzerland would receive as a pension, Dumur says.
A number of European countries have generous national health insurance, but these generally do not cover treatment abroad. Kuratli says the Swiss government would cover two-thirds of the bill for his wife’s care if she stays in Switzerland, but since high-end private clinics there can cost $15,000 or more per month, he could still end up paying more there than he would in Thailand.
British businessman Peter Brown has turned a bankrupt resort into the Care Resort Chiang Mai. Residents will live in five-room units, watched over by nurses 24 hours a day, and walk out into extensive, landscaped grounds, with a thousand trees and a lake, set in a tranquil area at the foot of mountains.
“In Europe they tend to follow a lock-up system. They know what should be done but they just don’t have the staff to do it—to take patients to visit gardens, to give them some freedom,” Brown says. “And the carers tend to come from the lower end of the nursing system. They often don’t have the desire to work with Alzheimer’s patients or an affinity with them.”
Woodtli agrees that it is crucial “for the patients to be together with their carers, to know and trust.” He says Thai caregivers like those at Baan Kamlangchay are generally more emotionally and physically engaged with their charges.
At the swimming pool, Madeleine Buchmeier snaps photos and laughs as she watches a caregiver take her smiling husband’s hands to twirl around together in a dance out of childhood.
“It’s a miracle,” she says. Geri used to bang his head against the walls of a care facility in Switzerland, she says, “as if he wanted to do something, get somewhere.”
He would sink when entering water. In the three weeks since they arrived, he has calmed down and can swim again, all while his medicine is being sharply reduced.
Like Kuratli, Buchmeier is deciding whether her 64-year-old husband should stay or go back to Switzerland. Once a Ford Motor Co. employee who spoke four languages, he now mutters largely disjointed sentences but appears to recognize his wife.
Nearby, Manfred Schlaupitz, a former Daimler-Benz engineer in his 70s, lies back in a deck chair, cradling a stuffed toy lamb. His caregiver, Kanokkan Tasa, sits on the grass beside him, gently massaging his legs and tickling his chin. She has been with him for six years, eight hours a day and earlier cared for Woodtli’s mother.
“If you think of it as a job it’s very difficult,” she says, “but if it comes from the heart, it is easy.”
She came to the home with no formal nursing training.
“I felt pity for them and asked myself, ‘If I was stricken with Alzheimer’s, how would I want to be cared for?’” she said.
The 32-year-old woman communicates in Thai, German, English and her native tribal language but most importantly, she says, through eye and physical contact and displays of emotion.
Like a number of Alzheimer’s victims, Schlaupitz responds well to music. Sometimes they sing one of his favorite songs: “Yesterday.”